The motivation behind the tournament was a lack of adequate and relevant information pertaining to epilepsy. Initiatives such as this intensify efforts to inform the Swazi nation about epilepsy, whilst raising the desperately needed funds to sustain and enhance the livelihood of those either living with or affected by epilepsy.
“The Swaziland Epilepsy Organization thanks all the partnering sponsors and donors for living up to their social corporate responsibilities. We care deeply about the quality of life of people with epilepsy. In pursuit of our mission to facilitate better opportunities for studying, securing employment and developing meaningful relationships for people with epilepsy. The organisation decided to commission a study of public understanding of epilepsy. This includes an investigation of the reasons for the stigmatisation and marginalisation of people with epilepsy,” said Mbusomuni Mahlalela, National Director of the Swaziland Epilepsy Organization.
Funds will be used in a research study that measures the level of understanding of epilepsy in schools, hospitals, clinics and homesteads in Swaziland. Throughout all awareness campaigns, the organisation encourages the search of relevant medical attention immediately upon realising that one has epilepsy. This helps limit the negative impact of the condition and helps minimise disability due to epilepsy.
“Most people were only aware of the general seizure whereby the patient falls to the ground and the body starts to jerk uncontrollably. People were not aware of other types of seizures, like the absent seizure, which is why they would use derogatory words like kundize ncedze, which implies that person is mentally challenged,” continued Mahlalela.
The main focus is to empower those living and affected by epilepsy. This is done through offering financial support to life-time projects that have the potential of sustaining the needs of people with epilepsy. The organisation takes the lead in assuring that the country’s hospitals and clinics have sufficient epilepsy medication and that all patients have easy access to epilepsy treatment and anti-epileptic drugs.